by Sarah | Jan 19, 2023 | Your Stories
Guillain Barré Syndrome …. Chronic Inflammatory Demyelinating Polyneuropathy, two conditions/syndromes/diseases that I had never heard of until Monday 25th June 2018. The week before this date, everything was normal. I was doing Spin classes at my local leisure centre...
by Sarah | Jan 18, 2023 | Your Stories
My journey began in April 2013. I was a stay at home mummy with two beautiful boys, and William my partner. I was healthy at thirty weeks pregnant, excitedly looking forward to the birth of our daughter who we had already named Kelsey-Mae Patricia. I started with...
by Sarah | Jan 18, 2023 | Your Stories
I have been invited to share with other gain4all readers my experience of CIDP over the past two years. I am in practice, as I recently gave an hour-long telephone interview to a modus researcher who wanted to know about my symptoms and response to IVIG treatment in...
by Sarah | Jan 17, 2023 | Your Stories
My story starts on New Year’s Eve 2011/2012. Since before Christmas, I had a persistent head cold and I didn’t seem to be able to shake it. On this particular Saturday (31st), I had been feeling unwell; feeling that I wanted to topple over. My wife, Mary and I went to...
by Sarah | Jan 17, 2023 | Your Stories
Jack Robinson had a mission – to donate his hair to the Little Princess Trust, to support his brave cousin Kieran who was diagnosed with Guillain-Barré syndrome and to raise funds for GAIN. Kieran’s mum, Jackie recalls: In September 2008, when Kieran was four we...
by Sarah | Jan 17, 2023 | Your Stories
Jasmine Dawood (Age 6) suffered from GBS in November 2013 when she was 3 years old; it was the most frightening time of her life (and her mum’s). What started as a chest infection quickly developed into GBS and she lost all function of her legs and arms for almost...
