Guillain Barré & Associated Inflammatory Neuropathies
Receiving a diagnosis of Guillain-Barré syndrome or CIDP can be a terrifying and isolating experience, bringing with it many questions and an uncertain future. GAIN is the only organisation dedicated to helping people affected by these conditions in the UK and Ireland. We are here to offer the information and help needed to support those affected by these conditions through this difficult time.
We can be contacted during office hours
(Monday to Friday, 9am to 3pm)
Telephone:
01529 469910
Email:
office@gaincharity.org.uk
Helpline
Our helpline is free, and is available during office hours (Monday to Friday, 9am-3pm). Outside these hours, please feel free to leave a message (name and phone number) and we will get back to you on the next working day. If you would like to talk to one of our volunteers who has first hand experience of living with and recovering from these conditions, give us a few details about yourself (age, diagnosis, stage of recovery, etc), and we’ll put you in touch with someone for a chat.
UK: 0800 374 803 / Ireland: 1800 806 152
Not resident in UK or Ireland? Sorry, we cannot visit or telephone you but please feel free to download our information free of charge.
We are a charity and we rely on your support to change the lives of the people affected by these illnesses. To donate, please select JustGiving and make a difference today.
Thank you!
Trustees
The Charity is governed by a voluntary board of trustees. Most of them are people who have direct experience of living with GBS or CIDP, either because they have suffered themselves, or because someone close to them has.
They are responsible for the Charity’s strategy and policies and, ultimately, for everything the Charity does on behalf of people affected by GBS, CIDP & associated inflammatory neuropathies.
Trustees are elected at the AGM and serve for three years.
Chris Fuller
William Harmer
David Wada
Paul Waine
Adam Pownall
Robin Sheppard
Jenny Willison
Lee Raynor
Harry Rowan
Susan McAllister
Do you have a question or comment for the Board of Trustees?
They would love to hear from you trustee.cf@gaincharity.org.uk
Management Team
The charity is run by the office-based team of Caroline Morrice (Chief Executive), Gill Ellis (Marketing & Engagement) and Simon Johnson (Communications Officer). David Wada, our Treasurer, is the other member of the team who provides the financial oversight.
Office
The Charity’s office is in Sleaford, Lincolnshire and is open Monday to Friday to offer help and support to those affected by the conditions by:
- Providing telephone support, information packs and arranging for volunteers to speak to patients and carers using their own experience of the conditions.
- Publishing a periodical magazine, gain4all.
- Providing briefings in hospitals
- Providing posters and leaflets for our volunteers and members to put up in their local area.
- Supporting our members who raise money for us with promotional items and publicising your event.
- Encouraging our members to take part in trials as well as funding valuable research into the conditions.
Office Staff and Contact Details
Chief Executive
Caroline Morrice
caroline.morrice@gaincharity.org.uk
Caroline is responsible to the board of trustees for the day-to-day running of the charity. She is also an ex officio member of the Board of Trustees and the Medical Advisory Board and acts as secretary of the peer review process for research projects. Additionally Caroline is a Trustee of the Neurological Alliance.
Marketing & Engagement
Gill Ellis
Gill is responsible for the charity’s marketing and engagement, helping those raising funds through provision of marketing materials and direct support. Ensuring our publications are current, editing your magazine gain4all and maintaining the website as well as posting on our social media platforms.
Communications Officer
Simon Johnson
simon.johnson@gaincharity.org.uk
Simon is responsible for the charity’s community liaison, being the first point of contact for patients, their families, our members and volunteers.
General queries office@gaincharity.org.uk
Further reading
Charity registration number : 1154843 (SCO39900 in Scotland)
GAINGlennys Sanders House
Pride Parkway
Sleaford
NG34 8GL