We can be contacted during office hours
(Monday to Friday, 9am to 3pm)
Our helpline is free, and is available during office hours (Monday to Friday, 9am-3pm). Outside these hours, please feel free to leave a message (name and phone number) and we will get back to you on the next working day. If you would like to talk to one of our volunteers who has first hand experience of living with and recovering from these conditions, give us a few details about yourself (age, diagnosis, stage of recovery, etc), and we’ll put you in touch with someone for a chat.
UK: 0800 374 803 / Ireland: 1800 806 152
Not resident in UK or Ireland? Sorry, we cannot visit or telephone you but please feel free to download our information free of charge.
The Charity is governed by a voluntary board of trustees. Most of them are people who have direct experience of living with GBS or CIDP, either because they have suffered themselves, or because someone close to them has.
They are responsible for the Charity’s strategy and policies and, ultimately, for everything the Charity does on behalf of people affected by GBS, CIDP & associated inflammatory neuropathies.
Trustees are elected at the AGM and serve for three years.
Do you have a question or comment for the Board of Trustees?
They would love to hear from you firstname.lastname@example.org
The charity is run by the office-based team of Caroline Morrice (Chief Executive), Gill Ellis (Marketing & Engagement) and Sarah Sismey (Community Liaison). David Wada, our Treasurer, is the other member of the team who provides the financial oversight.
The Charity’s office is in Heckington near Sleaford, Lincolnshire and is open Monday to Friday to offer help and support to those affected by the conditions by:
- Providing telephone support, information packs and arranging for volunteers to speak to patients and carers using their own experience of the conditions.
- Publishing a periodical magazine, gain4all.
- Providing briefings in hospitals
- Providing posters and leaflets for our volunteers and members to put up in their local area.
- Supporting our members who raise money for us with promotional items and publicising your event.
- Encouraging our members to take part in trials as well as funding valuable research into the conditions.
Office Staff and Contact Details
Caroline is responsible to the board of trustees for the day-to-day running of the charity. She is also an ex officio member of the Board of Trustees and the Medical Advisory Board and acts as secretary of the peer review process for research projects. Additionally Caroline is a Trustee of the Neurological Alliance.
Marketing & Engagement
Gill is responsible for the charity’s marketing and engagement, helping those raising funds through provision of marketing materials and direct support. Ensuring our publications are current, editing your magazine gain4all and maintaining the website as well as posting on our social media platforms.
Sarah is responsible for the charity’s comminuty liaison, being the first point of contact for patients, their families, our members and volunteers.
General queries email@example.com
Charity registration number : 1154843 (SCO39900 in Scotland)Registered office address:
Heckington Business Park