We can be contacted during office hours
(Monday to Friday, 9am to 3pm)
Our helpline is free, and is available during office hours (Monday to Friday, 9am-3pm). Outside these hours, please feel free to leave a message (name and phone number) and we will get back to you on the next working day. If you would like to talk to someone who has first hand experience of living with and recovering from these conditions, we can put you in touch with one of our peer support volunteers.
Please note, we cannot offer medical advice or counselling services, so if you require medical guidance, please contact your GP or other healthcare professional.
UK: 0800 374 803
Not resident in UK or Ireland? We cannot offer you direct support, but please feel free to download our information.
We are a charity and we rely on your support to change the lives of the people affected by these illnesses. To donate, please visit JustGiving and make a difference today.
GAIN is governed by a voluntary board of trustees. Most of them are people who have direct experience of living with GBS or CIDP, either because they have suffered themselves, or because someone close to them has.
They are responsible for the strategy and policies and, ultimately, for everything the charity does on behalf of people affected by GBS, CIDP & the associated inflammatory neuropathies.
Trustees are elected at the AGM and serve for three years.
Do you have a question or comment for the Board of Trustees?
They would love to hear from you firstname.lastname@example.org
The charity is run by the office-based team of Caroline Morrice (Chief Executive), Gill Ellis (Marketing & Engagement) and Simon Johnson (Community Liaison Officer). David Wada, our Treasurer, is the other member of the team who provides the financial oversight.
Our office is in Sleaford, Lincolnshire and is open Monday to Friday to offer help and support to those affected by the conditions by:
- Providing telephone support and information packs, and arranging for volunteers to speak to patients and carers using their own experience of the conditions
- Publishing regular newsletters and a periodical magazine, gain4all
- Providing awareness briefings to hospital staff and healthcare students
- Providing posters and leaflets for our volunteers and members to put up in their local area
- Supporting our members who raise money for us with promotional items and help to publicise their event
- Encouraging our members to take part in trials and helping to fund valuable research into the conditions
Office Staff and Contact Details
Caroline is responsible to the board of trustees for the day-to-day running of the charity. She is also an ex officio member of the Board of Trustees and the Medical Advisory Board and acts as secretary of the peer review process for research projects. Additionally Caroline is a Trustee of the Neurological Alliance.
Marketing & Engagement
Gill is responsible for the charity’s marketing and engagement, helping those raising funds through provision of marketing materials and direct support. Ensuring our publications are current, editing your magazine gain4all and maintaining the website as well as posting on our social media platforms.
Simon is responsible for the charity’s community liaison, being the first point of contact for patients, their families, our members and volunteers.
General queries email@example.com