Your Stories

Bronya’s Story

Thank you to Bronya who submitted this story about her experience with GBS. On 15th March 2024 she "began [her] journey into GBS land", and at time of writing, it's now the 15th March 2025 and we're thankful Bronya was able to sit and pen this piece to share with our...

Jon’s Story: Acute Motor Axonal Neuropathy: 15 Years On

In our latest newsletter, we shared an encouraging piece from Jon Shelton. Jon sent over a fantastic document but we didn't have the space to print the full thing - you can find the unabridged copy here. I’m not sure if the numbers have changed much since 2010 when I...

Pregnant with Guillain-Barré syndrome

Cheryl Perkins lives in Adrada de Haza, a small village in the north of Spain, with her partner, Daniel, 19-month-old son, Luca, two dogs and the cat. Cheryl’s roller coaster of 2020 began whilst she was just over three months pregnant with their second child...

Kathleen’s Story

"I started to suffer with a cold on January 23, which went into a kidney infection then into suspected allergic reaction to my antibiotics. By the 16th of February I was weak, pins and needles in my hands and feet and no taste in my mouth. I was admitted to the RAH...

40 Years Living with Guillain-Barré Syndrome (GBS)

40 Years Living with Guillain-Barré Syndrome (GBS): A Self Case Study Introduction As I approach my 70th year and reflect on the 40 years since my diagnosis with Guillain-Barré Syndrome (GBS), I aim to share my experiences to inform and possibly help others affected...

‘I couldn’t breathe or talk but still tipped a big winner’

Trevor Jacobs is co-owner of Champion Chase contender Editeur Du Gite but will be watching Cheltenham from his hospital bed. When Trevor Jacobs, part-owner of Champion Chase hope Editeur Du Gite, recently won a four-figure sum on a bet his celebration was more muted...

Pete’s Story

We were recently contacted by Pete MacKenzie, who was kind enough to share his story with AMSAN I was diagnosed with Guillain Barré Syndrome (GBS) last May. The 16th to be precise. Since then my life has been split in two... BGB and AGB. Before Guillain Barré and...

12 challenges in 12 months

Last year Jodie Prior undertook 12 challenges for GAIN in 12 months, all in the name of her Grandad, Colin. Here is her story of a most remarkable year. I lost my beloved Grandad, Colin, to Guillain-Barré syndrome in 2020 during the Covid-19 pandemic. My family were...

Recovering from GBS for a second time at 87

This is my story about recovering from Guillain-Barre syndrome (GBS) after contracting the very rare illness for the second time at the age of 87. I decided to share my story (with some help from my family) to give hope and inspiration to others with GBS that they too...