Information & Support

Guillain-Barré syndrome, CIDP and other associated inflammatory neuropathies can have a devastating effect on those diagnosed and also on their family and friends. Our help is available for everyone, whether you are the patient or close to someone who has been diagnosed with one of these conditions.


Freephone (UK only): 0800 374 803 
General office line: 01529 469910

Our Helpline is free, and is available during office hours (Monday to Friday, 9am-3pm). Outside these hours, please leave a message (name and phone number) and we will get back to you on the next working day. If you live in the Republic of Ireland, please either use the general office phone line or email us with your phone number, and we will get back to you.

Please note, we cannot offer medical advice or counselling services, so if you require medical guidance, please contact your GP or other healthcare professional.

For help with mental wellbeing, please visit NHS Every Mind Matters or Mind and if you live in the Republic of Ireland, please click here to look up mental health services available in your area.

Not resident in the UK or Ireland? We cannot offer you direct support, but please feel free to download our information.

Talk with others affected by GBS/CIDP and related illnesses

If you would like to talk to one of our peer support volunteers who has first hand experience of living with and recovering from these conditions, give us a few details about yourself (contact details, age, diagnosis, stage of recovery, etc), and we’ll put you in touch with someone for a chat.  This could be by phone, email or video chat via Whats App, Skype, Zoom, etc.

Face to face visits in hospital are under review, and for the time being, we are offering contact by phone or video chat (WhatsApp, Facetime, etc) only. Please click on the link below and fill in the contact form.

Speak to a recovered patient