News

• Prior to 2021, plasma collected in the UK was banned for use in the production of fractionated plasma derived medicines (e.g., immunoglobulins, albumins, coagulation factors), as a safety measure following the 1998 outbreak of ‘mad cow disease’. Due to the ban, 100% of the immunoglobulin (Ig) used in England is imported and c.80% is […] Read More

On 26 May, the government announced new help to support people with the cost of living. There are a number of different schemes that are aimed at different groups. On 26 May, the government announced new help to support people with the cost of living. There are a number of different schemes that are aimed at […] Read More

Do you have a Disability? Are you a parent or carer of a Disabled child or adult? If so, use this website to save time finding Disability Grants. Charities and Trusts provide funding towards the high cost of disability equipment, holidays, housing, days out………in fact anything above and beyond the normal costs of everyday living. Searching for […] Read More

1 in 6 people in the UK live with a neurological condition but there simply isn’t the workforce or services in place to support them. Join us in calling on governments across the UK to #BackThe1in6 and set up a Neuro Taskforce to deliver real change. Sign the petition today. In 2021/2022, we supported My […] Read More

A stalwart Norfolk cricketer walked to the wicket for a landmark innings that he thought might never happen. Steve Phoenix was playing his 1000th senior game for Great Melton Cricket Club just months after being struck down by a rare virus. Mr Phoenix contracted Guillain Barre Syndrome towards the end of 2021 and spent three […] Read More

Article from The Mirror AstraZeneca Covid vaccine could increase risk of ‘locked-in’ Guillain-Barré Syndrome Scientists believe the jab’s Trojan horse delivery system could be to blame for the increased risk of Guillain-Barré Syndrome which can cause muscle paralysis in some patients The AstraZeneca coronavirus vaccine may lead to an increased risk of developing the serious […] Read More

Article from the Telegraph: AstraZeneca vaccine may increase risk of serious neurological condition Scientists believe the jab’s Trojan horse delivery system could be causing a rise in Guillain-Barré syndrome cases By Sarah Knapton, SCIENCE EDITOR 28 May 2022 • 5:26pm The AstraZeneca vaccine may increase the risk of the serious neurological condition Guillain-Barré syndrome (GBS) […] Read More

Chronic autoimmune demyelinating polyneuropathy (CIDP) is a rare autoimmune disorder in which the body’s immune system attacks the myelin sheaths. Myelin sheaths are the fatty insulation covering and protecting the nerves, and damage to these can lead to neurological symptoms like numbness, tingling, and weakness. CIDP is a chronic disease in the Guillain-Barré syndrome spectrum. Numerous […] Read More

OBJECTIVE: COVID-19 has been associated with neurological complications such as Guillain-Barre syndrome (GBS). Several cases have been reported, but without functional outcome data after intensive rehabilitation and medium-term follow-up. METHODS: In this observational study, patients were admitted in 2019 and 2020 to inpatient rehabilitation for GBS and were examined using the Barthel index, GBS-Disability Scale, […] Read More

Following the launch of the Adult Disability Payment pilot in Dundee, Perth and Kinross and the Western Isles in March 2022, we have published the Decision Making Guidance for Adult Disability Payment on our website. This guidance is used by Social Security Scotland case managers to help them make decisions on new and existing Adult Disability Payment […] Read More