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AGM & Members’ Meeting 2018

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The GAIN 2018 AGM and Members’ Meeting will be held at the Catholic Church Hall, Jermyn Street, Sleaford, NG34 7RF on Saturday 6th October. Parking is available opposite the hall. Everyone is welcome to join us for the AGM which will commence at 10.30 am (arrivals and coffee from 10am) and will be immediately followed […] Read More

All Party Parliamentary Group meeting Monday 9th July

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On Monday 9 July, the All Party Parliamentary Group (APPG) on Rare, Genetic and Undiagnosed Conditions held a meeting on European Reference Networks (ERNs). ERNs connect clinicians and researchers across Europe to allow expertise to be shared across borders, allowing faster access to expert advice, diagnosis and care. Here is the link for the full write […] Read More

Get involved with the making of a GBS documentary

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We have the opportunity to be involved with a BAFTA nominated documentary maker who is interested in giving people with GBS a voice, and letting a wider audience know about the affliction. If you live in England or Wales and would like to get involved, please let us know. To whom it may concern, Thanks […] Read More

Don’t Gamble When You Travel

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  If money and circumstance allows, summer sees many people packing up and shipping out for a week or two of relaxation and a bit of exploring. Most will take out holiday insurance, but some consider this to be an unnecessary extra expense that they don’t really need. If you think you cant afford to […] Read More

Know Your Food Hygiene and BBQ Safely

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  Cases of food poisoning almost double during the summer, and research shows that the undercooking of raw meat and the contamination of bacteria onto the food we eat are among the main reasons. Follow this simple advice from the Food Standards Agency to keep your family safe this summer. Pre-cook – Cook all chicken […] Read More

‘gain2gether’ meetings in 2018/19

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If you would like to organise a gain2gether in an area not listed below, please contact us with a proposed date and venue. Coming up in 2018 and 2019   Lancashire & Cumbria Our 2018 dates are 15th September and 8th December Our 2019 dates are 9th March, 15th June (AGM), 14th September and 7th […] Read More