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Chronic autoimmune demyelinating polyneuropathy (CIDP) is a rare autoimmune disorder in which the body’s immune system attacks the myelin sheaths. Myelin sheaths are the fatty insulation covering and protecting the nerves, and damage to these can lead to neurological symptoms like numbness, tingling, and weakness. CIDP is a chronic disease in the Guillain-Barré syndrome spectrum. Numerous […] Read More

OBJECTIVE: COVID-19 has been associated with neurological complications such as Guillain-Barre syndrome (GBS). Several cases have been reported, but without functional outcome data after intensive rehabilitation and medium-term follow-up. METHODS: In this observational study, patients were admitted in 2019 and 2020 to inpatient rehabilitation for GBS and were examined using the Barthel index, GBS-Disability Scale, […] Read More

Following the launch of the Adult Disability Payment pilot in Dundee, Perth and Kinross and the Western Isles in March 2022, we have published the Decision Making Guidance for Adult Disability Payment on our website. This guidance is used by Social Security Scotland case managers to help them make decisions on new and existing Adult Disability Payment […] Read More

Your financial health check. Struggling to pay bills and other everyday costs of living? Find out what help may be available to you through benefits, grants and other sources of support. This financial health check will help you get control of your budget but won’t help if you’re in an emergency. If you are in an emergency […] Read More

The Medicines and Healthcare products Regulatory Agency (MHRA) has issued a drug safety update on the use of pregabalin in pregnancy, following a new study suggesting that it may slightly increase the risk of major congenital malformations.   Advice for healthcare professionals is that potentially fertile women should continue to use effective contraception during treatment […] Read More

The late William Harmer, 1943-2022

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It is with sadness that we have to report the death of one of our Trustees, William Harmer.  William became a trustee in 2008, having previously been an active supporter of his local branch following his recovery from a severe bout of GBS. William, who as one of the longest-serving was always an active member […] Read More

Abstract Vaccination against viruses has rarely been associated with Guillain-Barré syndrome (GBS). An association with the COVID-19 vaccine is unknown. We performed a population-based study of National Health Service data in England and a multicentre surveillance study from UK hospitals, to investigate the relationship between COVID-19 vaccination and GBS. Firstly, case dates of GBS identified […] Read More

Falls in people post-Guillain-Barré syndrome in the United Kingdom: A national cross-sectional survey of community based adults Guillain-Barré syndrome (GBS) has several enduring effects that can lead to further harm and/or lower quality of life. These effects include falling and body pain, neither of which have been fully explored. This study aims to examine the […] Read More

One-off PHB for hospital discharge

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One-off PHB for hospital discharge An interesting development in the drive to get patients home from hospital more quickly – a one-off PHB (Personal Health Budget) for hospital discharge. One of the complicating factors around care of people who are seriously ill with COVID is the number of patients who can’t be discharged from hospital, […] Read More