Your Stories

David Stonehouse shares his story of Guillain-Barre syndrome from diagnosis to recovery – “He tapped my knees with his hammer, but they were totally dead – he would have got more response from a tree trunk. I had various tests carried out, the last one being a lumbar...

This is my story so far. It all started Saturday 16 June 2018. I awoke with a slight weakness in my left hand. I did not think too much about it as for about 10 days or so previous I’d had a stinker of a cold and assumed the weakness was related. The weakness had got...

In my mind I'm free By Angus Harper After completing my degree, I thought I would treat myself to a year abroad before starting full time work. Not even a week after my graduation I was on a plane to work as a cashier in a large store in Midtown, Manhattan. Following...

Dylan was only three years old when he started to complain that his legs hurt. His mum knew it wasn’t just growing pains, but it took a few days of fear and uncertainty before Guillain-Barre syndrome was confirmed. A parent's worst nightmare by Carina Whitehouse...

At 56 my sister was a very busy person. Working as a civil servant, giving 120% to her job and playing a key part in her first grandchild’s care, enabling her son and daughter-in-law to be out at work and Karen could spend regular time with young Mary as she was...

From blurred vision to paralysis in 48 hours Phil Morgan tells us about his experience with a rare variant of GBS known as Miller Fisher My mysterious illness began on June 14th, 2016. I started to notice my eyesight was becoming affected during the morning of that...

In July 2017 I fell ill whilst studying at the University of Nottingham. Initially starting with severe back pain for which I was provided painkillers by the doctors I then spent a few days with heavy flu like symptoms and was advised by 111 to go to hospital after I...

A photographer's blog by Iain Kendall Although I mainly write about my photography, the last few weeks have been some I’ll never forget, and it has nothing to do with cameras. On Monday, 23rd March 2015, I was sitting at my desk, worrying. Worrying about a series of...

Back in 1990, Helen Young’s sister died within two weeks from a syndrome she’d never heard of, Guillain-Barre syndrome. She was only 18, Helen was 21. Helen decided to raise funds to help other people affected by this devastating illness. In 1992 I ran the London...