Your Stories

This is my story so far. It all started Saturday 16 June 2018. I awoke with a slight weakness in my left hand. I did not think too much about it as for about 10 days or so previous I’d had a stinker of a cold and assumed the weakness was related. The weakness had got...

At 56 my sister was a very busy person. Working as a civil servant, giving 120% to her job and playing a key part in her first grandchild’s care, enabling her son and daughter-in-law to be out at work and Karen could spend regular time with young Mary as she was...

A photographer's blog by Iain Kendall Although I mainly write about my photography, the last few weeks have been some I’ll never forget, and it has nothing to do with cameras. On Monday, 23rd March 2015, I was sitting at my desk, worrying. Worrying about a series of...

In my mind I'm free By Angus Harper After completing my degree, I thought I would treat myself to a year abroad before starting full time work. Not even a week after my graduation I was on a plane to work as a cashier in a large store in Midtown, Manhattan. Following...

From blurred vision to paralysis in 48 hours Phil Morgan tells us about his experience with a rare variant of GBS known as Miller Fisher My mysterious illness began on June 14th, 2016. I started to notice my eyesight was becoming affected during the morning of that...

Back in 1990, Helen Young’s sister died within two weeks from a syndrome she’d never heard of, Guillain-Barre syndrome. She was only 18, Helen was 21. Helen decided to raise funds to help other people affected by this devastating illness. In 1992 I ran the London...

In April last year, Sharon and I finally tied the knot; we had been engaged for far too many years. There is not too much that we haven’t been through in our time together but nothing had prepared us for the impact that GBS inflicted upon our family five years ago. In...

This is a lifelong illness for me and many others that live with it so to raise awareness and some funds to aid with research and support others going through GBS I am going to climb Pen Y Fan which is the highest peak in South Wales at 2907 feet high and is an 11...

Malcolm Hanney faced some unexpected challenges when he made a new life for himself in Malaysia. Three years ago, while my son Steven and I were visiting Malaysia – he was doing a few weeks’ work experience with the YTL group in KL- we decided to take a weekend trip...