Your Stories

On 1 June 2015, at the age of 68, I was diagnosed with GBS. This followed a bout of food poisoning (campylobacter) a fortnight before. On 30 May I felt some weakness in my legs and by the morning of 1 June I had lost all use of arms, legs and hands. I was hospitalised...

I walked up Ben Nevis because I CAN! Two years ago (May 2012) I started trekking up a mountain in Nepal; I didn’t reach the top but had to be helicoptered off when I lost strength in my arms & legs, falling over and being unable to stand back up (thank you to the...

Ice hockey fan favourite back on the ice Ice hockey is a sport perhaps most would associate with North America and Canada but this fast paced, physical sport is also played throughout the UK. Canadian Mike Egener is a defenceman for Coventry Blaze who play in the UK...

Two years on from the worst period in my life, these dark days when I was wondering what was the point of living whilst locked in an immobile body, I will be running in Surrey half marathon on March 9th to raise funds for GAIN. As I’ve been press-ganged to write up my...

On awaking on 31st October 2012, getting out of bed I said to my wife, “there is something wrong with my fingers.” They felt heavy. Pam (my wife) called 111, an ambulance car with paramedics, who examined me but could find nothing wrong, so they left. I had a job to...

My name is Jacqui and I have been asked to share my experience of supporting my best friend through the journey from diagnosis to recovery from Guillain-Barre syndrome. Before you begin to read this account, two things need to be made crystal clear. Firstly, I am ‘as...

How a fast-paced contact sport helped a mother of two find her feet and regain her confidence I’ve always been an active person. My entire life was based around dance or sport. Swimming was a huge part of my life also. I was a lifeguard and gym instructor for 7 years....

For many years it had been an ambition of mine to visit Russia, particularly St. Petersburg. In February 2010 when I had Guillain-Barre syndrome, and was completely paralysed, it looked as if it was something I would never achieve. However, I was able to make a good...

In April 2014, Tony Curry was struck down by a severe form of the condition, Miller Fisher. Whilst on holiday in Wales he became ill, was rushed to hospital and within 24 hours, was in intensive care. Tony was totally paralysed, he remained in a coma for a month and...