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New name – new website – same commitment. Visit inflammatoryneuropathies.uk to learn more about our evolution. 

Your Stories

A Plan Postponed

A Plan Postponed

In November 2011 I gave birth to a beautiful boy. It was a C-section delivery but as a fit 31 year-old woman I recovered quickly and had a very active and fun maternity leave. I was also training for the Great North Run the following September. On 1st September 2012 I...

GBS – Life moves on One year from diagnosis

GBS – Life moves on One year from diagnosis

On 1 June 2015, at the age of 68, I was diagnosed with GBS. This followed a bout of food poisoning (campylobacter) a fortnight before. On 30 May I felt some weakness in my legs and by the morning of 1 June I had lost all use of arms, legs and hands. I was hospitalised...

Jacob Willis – My GBS story

Jacob Willis – My GBS story

Two years on from the worst period in my life, these dark days when I was wondering what was the point of living whilst locked in an immobile body, I will be running in Surrey half marathon on March 9th to raise funds for GAIN. As I’ve been press-ganged to write up my...

Rachel’s road to Rio

Rachel’s road to Rio

It’s 1:00 am in Rio on Sunday morning 18/9/16. I’m absolutely exhausted but buzzing with overwhelming joy. Apologies that this is a long post but I’m a bit emotional and it hasn’t really sunk in yet. Day 10. Last day of the competition. 17/9/2016. Main event. 50m...

Heidi walks up a mountain

Heidi walks up a mountain

I walked up Ben Nevis because I CAN! Two years ago (May 2012) I started trekking up a mountain in Nepal; I didn’t reach the top but had to be helicoptered off when I lost strength in my arms & legs, falling over and being unable to stand back up (thank you to the...

Tony Wyatt- My experiences of GBS

Tony Wyatt- My experiences of GBS

On awaking on 31st October 2012, getting out of bed I said to my wife, “there is something wrong with my fingers.” They felt heavy. Pam (my wife) called 111, an ambulance car with paramedics, who examined me but could find nothing wrong, so they left. I had a job to...

Antigua Sailing Dream – Dave Selby

Antigua Sailing Dream – Dave Selby

I dreamed of this, as I lay paralysed in a hospital bed. The leather-skinned steering wheel, warm to the touch, playing through my palms as the yacht heeled, gathered on its haunches, settled in its groove and powered up into the shimmering, rolling dunes of chromium...

Back on the ice

Back on the ice

Ice hockey fan favourite back on the ice Ice hockey is a sport perhaps most would associate with North America and Canada but this fast paced, physical sport is also played throughout the UK. Canadian Mike Egener is a defenceman for Coventry Blaze who play in the UK...

A Journey through the eyes of a carer

A Journey through the eyes of a carer

My name is Jacqui and I have been asked to share my experience of supporting my best friend through the journey from diagnosis to recovery from Guillain-Barre syndrome. Before you begin to read this account, two things need to be made crystal clear. Firstly, I am ‘as...