Your Stories Archives

Bronya’s Story

by Chris Morton | Mar 15, 2025 | Your Stories

Thank you to Bronya who submitted this story about her experience with GBS. On 15th March 2024 she “began [her] journey into GBS land”, and at time of writing, it’s now the 15th March 2025 and we’re thankful Bronya was able to sit and pen this...

Kathleen’s Story

by Chris Morton | Feb 28, 2025 | uncategorised, Your Stories

I started to suffer with a cold on January 23, which went into a kidney infection then into suspected allergic reaction to my antibiotics. By the 16th of February I was weak, pins and needles in my hands and feet and no taste in my mouth. I was admitted to the RAH...

Pete’s Story

by Chris Morton | Feb 28, 2025 | Your Stories

We were recently contacted by Pete MacKenzie, who was kind enough to share his story with AMSAN I was diagnosed with Guillain Barré Syndrome (GBS) last May. The 16th to be precise. Since then my life has been split in two… BGB and AGB. Before Guillain Barré and...

Jon’s Story: Acute Motor Axonal Neuropathy: 15 Years On

by Chris Morton | Dec 13, 2024 | Your Stories

In our latest newsletter, we shared an encouraging piece from Jon Shelton. Jon sent over a fantastic document but we didn’t have the space to print the full thing – you can find the unabridged copy here. I’m not sure if the numbers have changed much since...

40 Years Living with Guillain-Barré Syndrome (GBS)

by Rich | Jun 14, 2024 | Your Stories

40 Years Living with Guillain-Barré Syndrome (GBS): A Self Case Study Introduction As I approach my 70th year and reflect on the 40 years since my diagnosis with Guillain-Barré Syndrome (GBS), I aim to share my experiences to inform and possibly help others affected...

12 challenges in 12 months

by Rich | Mar 5, 2024 | Your Stories

Last year Jodie Prior undertook 12 challenges for GAIN in 12 months, all in the name of her Grandad, Colin. Here is her story of a most remarkable year. I lost my beloved Grandad, Colin, to Guillain-Barré syndrome in 2020 during the Covid-19 pandemic. My family were...