Your Stories

Teresa Gatesman – Understanding of certain CIDP symptoms

I have just finished reading Oliver Sacks’ book Hallucinations and have finally got an answer to my questions about a number of symptoms that have been plaguing me since 1997 and which at times, when I have spoken about them to my doctors, have led to exceedingly...

Sally Haycock Ironman Staffordshire 70.3

Having been diagnosed with Guillain-Barre syndrome in 2013, resulting in paralysis and hospitalisation for 3 months, I was fortunate enough to overcome this debilitating illness. On discharge from hospital I spent the next 3 months in a wheelchair and then over the...

Marathon Marvels

This year, we were lucky enough to have no fewer than four people running for GAIN in the Virgin Money London Marathon! A massive thank you for doing a phenomenal job, raising well in excess of £12,000 including Gift Aid in total! Oliver Bray GAIN silver bond runner,...

Steve Milne Fundraising

I haven’t always been a runner. In fact, a little over a year ago I had never run anywhere in my life and would have sworn that I never would. However, after losing my Dad, Jon in 2009, my outlook on life and health did slowly begin to change. Having said that I still...

Sally has Hot Flush for GAIN

On 22nd February 2014 we held a fundraising evening for GAIN Charity. I was diagnosed in January 2013 with GBS and because I am well on my road to recovery I decided that I wanted to give something back to the charity that had helped me and my family through some...

Kuala Lumpur to Queen Square

5 years on from Guillain-Barré syndrome Malcolm Hanney OBE shares his GBS journey, taking us from Kuala Lumpur to Queen Square and back again It was Christmas 2012 and I had just completed the first semester of a Masters’ course in South East Asian Studies at the...

Simon Connellan – Prudential RideLondon

This article is taken from Prudential Ride London’s website, as GBS survivor Simon Connellan discusses his recovery from the syndrome and raising money for GAIN:...

Repairing Spaghetti Junction

I’ve never been much of a night owl, and have always needed my sleep. Even as a child I would often ask to go to bed early. Since I became ill my need for sleep has gone off the richter scale! On a weekend if I don’t set an alarm, I can easily sleep for twelve to...

Jumping from 15000 feet

19th September was a beautiful sunny day! Unfortunately I was facing my fears! I did a skydive at 15000 feet at my local skydiving centre in Durham. It was surreal doing something which was utterly terrifying but amazing at the same time! I wanted to do something to...