Your Stories

My story starts on New Year’s Eve 2011/2012. Since before Christmas, I had a persistent head cold and I didn’t seem to be able to shake it. On this particular Saturday (31st), I had been feeling unwell; feeling that I wanted to topple over. My wife, Mary and I went to...

Jack Robinson had a mission – to donate his hair to the Little Princess Trust, to support his brave cousin Kieran who was diagnosed with Guillain-Barré syndrome and to raise funds for GAIN. Kieran’s mum, Jackie recalls: In September 2008, when Kieran was four we...

Jasmine Dawood (Age 6) suffered from GBS in November 2013 when she was 3 years old; it was the most frightening time of her life (and her mum’s). What started as a chest infection quickly developed into GBS and she lost all function of her legs and arms for almost...

I did the Yorkshire Three Peaks on Saturday 6th October. I began my walk in Horton- On- Ribblesdale at a very dark and dreary 06:00 in the morning. There were plenty of other walkers around at that time; however it was still so daunting. I traveled up to Yorkshire...

After my daughter Amy was born with CIDP, four years ago, I always knew I wanted to do something for GAIN to give something back for all the help they gave us through the hard times. Having not ridden a bike for years I thought the perfect challenge would be a 234...

A stalwart Norfolk cricketer walked to the wicket for a landmark innings that he thought might never happen. Steve Phoenix was playing his 1000th senior game for Great Melton Cricket Club just months after being struck down by a rare virus. Mr Phoenix contracted...

Chapter One GBS during the pandemic On Wednesday 25th November 2020, after a few days of feeling unwell, Nick Harvey woke in the early hours of the morning and found his legs were totally paralysed. He tried to get out of bed and fell in a heap on the floor, unable to...

Lee Clark, professional football manager and former Premier League player, tells us about his family’s experience with Guillain-Barré syndrome. Lee starts by recounting the beginning of his father’s illness, and how it progressed. Well it was December 2017 and my...

Sunday 26th April 2020 should have seen thousands of runners pounding the streets for the 40th London Marathon. Instead, a challenge with a difference was launched. The COVID-19 pandemic has had a catastrophic effect with the cancellation of thousands of events and...