Your Stories

On the 9th of February this year, my incredible mother was admitted to Salisbury Hospital having begun to lose sensation in her feet. Later that day she was diagnosed with Guillain-Barré syndrome (GBS). It is a terrifying condition, involving progressive paralysis of...

I sadly lost my dad last year to Guillain-Barre syndrome and have witnessed first hand the devastating consequences of the illness. I miss my dad dearly every single day. I completed a 13 mile obstacle Rat Race in his memory and in doing so, I hoped to raise awareness...

Natasha Porter and her friend Rebecca run the Richmond Spring 10k “Very pleased to say that one and a half years after getting GBS I have just completed a 10k run and have managed to raise £555 (so far!) for GAIN. It’s taken a lot of work and my feet are buzzing like...

I had Guillain-Barre Syndrome, the AMAN version, in 2009 and was in 3 hospitals for 4 and a half months in total, followed by 1 and a half years of physiotherapy and off work for 20 months in all. I became a volunteer for GAIN prior to going back to work and have been...

Although in his late 70s, Peter Woolsey was a fit and active entrepreneur who enjoyed regular trips abroad both for pleasure and business. The unexpectedly ground to a halt in December 2018, when he started to experience the first signs of Guillain-Barre syndrome....

Written by Carl Nicholls In 2009 our son Aaron was struck down with Guillain-Barre syndrome at the age of 19 being previously well and fit as youngsters are. Guillain-Barre (named after the French doctors who discovered it) is a relatively rare syndrome that anyone...

Kate France shares her experience of getting her life back after a diagnosis of GBS in 2013, followed by a further diagnosis of CIDP when the symptoms returned two years later. Like most people reading this magazine, I have a significant date. Actually, I have two,...

My name is Danielle Robinson and I am 22. I was diagnosed with Chronic inflammatory demyelinating polyneuropathy (CIDP) in December 2017 but it took 3 months since I started with symptoms to diagnose. In September I began to have pins and needles in my hands and feet...

‘Gordon was diagnosed with GBS in 2015 at the age of 68. This is his personal reflection on the life changes he has undergone and the challenges he still faces. He is trying to be honest!’ “Don’t slurp, Granddad!” The hospital ward was in semi-darkness, only the...