Your Stories
Dirty Weekend at Burghley
I sadly lost my dad last year to Guillain-Barre syndrome and have witnessed first hand the devastating consequences of the illness. I miss my dad dearly every single day. I completed a 13 mile obstacle Rat Race in his memory and in doing so, I hoped to raise awareness...
Diagnosis debate – Peter Woolsey
Although in his late 70s, Peter Woolsey was a fit and active entrepreneur who enjoyed regular trips abroad both for pleasure and business. The unexpectedly ground to a halt in December 2018, when he started to experience the first signs of Guillain-Barre syndrome....
Danielle Robinson’s CIDP story
My name is Danielle Robinson and I am 22. I was diagnosed with Chronic inflammatory demyelinating polyneuropathy (CIDP) in December 2017 but it took 3 months since I started with symptoms to diagnose. In September I began to have pins and needles in my hands and feet...
Race to Silverstone
Natasha Porter and her friend Rebecca run the Richmond Spring 10k “Very pleased to say that one and a half years after getting GBS I have just completed a 10k run and have managed to raise £555 (so far!) for GAIN. It’s taken a lot of work and my feet are buzzing like...
Aaron’s Story – Sam’s Inspiration
Written by Carl Nicholls In 2009 our son Aaron was struck down with Guillain-Barre syndrome at the age of 19 being previously well and fit as youngsters are. Guillain-Barre (named after the French doctors who discovered it) is a relatively rare syndrome that anyone...
Don’t slurp Grandad!
‘Gordon was diagnosed with GBS in 2015 at the age of 68. This is his personal reflection on the life changes he has undergone and the challenges he still faces. He is trying to be honest!’ “Don’t slurp, Granddad!” The hospital ward was in semi-darkness, only the...
Fundraising reports – Virgin London Marathon 2014
£5000 was collectively raised by the wonderful Blanche, Tony, Marc, Neil and Richard who took part in Virgin’s London Marathon. Tony Rogers having just crossed the finish line, “The day was an amazing experience, I’m glad I could contribute something to all the good...
Tough Mudder
My nan (Sheila Spittle) was an amazing woman. Her strength, determination and outlook on life was inspirational. She was an active lady who enjoyed arts and crafts (made all of her own lovely cards), going to the theatre and spending time with family and friends. One...
Two journeys in one
It is a long way. My wife, Sheila, and I started at Minehead in May 2011 with a target of walking the South West Coast Path in weeklong blocks and over four to five years. Six hundred and thirty miles of it are quite a challenge and a good one to set ourselves for...