My Involvement Profile

Whether you’re here as someone who organises involvement activities, a person who regularly gets involved, or someone totally new to involvement, the My Involvement Profile is for you.

My Involvement Profile has two parts:

  • A personal information form to record your contact details and other experience you have
  • A form to record your access and support requirements.

The profile is free to download and use. We will just ask you a few quick questions and then it’s yours to use!

If you want to share your lived experience

Tired of repeating your access and support needs over and over again?

It gets irritating doesn’t it? Having to repeat your access requirements to various organisations, only to find they’ve been forgotten about, or lost, or you’ve missed something. Perhaps there’s an adjustment you need which you often forget to ask for, only to remember when it’s too late. Or maybe you don’t like to ask for what you need, thinking it’s ‘making a fuss’ to ask for larger print or for things to be sent by post rather than email.

But those reasonable adjustments can make a big difference. They can be the difference between feeling involved or feeling excluded, the difference between having your say, or staying silent and letting someone else share their opinions instead.

Shaping Our Lives is a non-profit, user-led group, led by Disabled people and service users. We want to make sure everyone can have their say, especially those from marginalised groups who often face barriers to getting involved.

Involvement activities enable people to influence and improve policies and services that affect their lives, like health or social care. Involvement can mean sharing your experiences and opinions in a focus group, a patient involvement forum, or a research study.

The My Involvement Profile was designed by Disabled people. It’s made up of two simple template forms.

It can help you:

  • Keep a record of your involvement activities.
  • Keep a list of your access and support requirements so you don’t have to keep repeating them.
  • Each section has help notes to assist you in completing it if you need them.

We have also included in the personal information form a place to record interests, skills, and involvement activities. Having a place to jot down interests and skills is a useful thing to have if you’re thinking about getting involved with an organisation as part of their board, public feedback forums, or research groups.

The Profile is free to download and use. We will just ask you a few quick questions and then it’s yours to use.

To continue reading and set up your profile, click here: My Involvement Profile – Shaping Our Lives

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