Your stories – GBS – GAIN

Welcome to the GBS stories portal, here you can find all the stories provided to us by the GAIN community regarding Guillain-Barre syndrome. Please feel free to share your own here.

Hayden Tetley – University and GBS

In July 2017 I fell ill whilst studying at the University of Nottingham. Initially starting with severe back pain for …

A Father’s Day that’s hard to forget

It all started Saturday 16 June 2018. I awoke with a slight weakness in my left hand. I …

My much younger sister

At 56 my sister was a very busy person. Working as a civil servant, giving 120% to her job and playing a key part in her first grandchild’s care…

Blindsided

On Monday, 23rd March 2015, I was sitting at my desk, worrying. Worrying about a series of symptoms that had steadily become worse…

In my mind I’m free

After completing my degree, I thought I would treat myself to a year abroad before starting full time work. Not even a week after…

Blurred vision to paralysis

My mysterious illness began on June 14th, 2016. I started to notice my eyesight was becoming affected during…

Favours for GAIN

In April last year, Sharon and I finally tied the knot; we had been engaged for far too many years. There is not too..

Snowdon

This is a lifelong illness for me and many others that live with it so to raise awareness and some funds to aid with research and support. . .

Mastering the art of life in Malaysia

Malcolm Hanney faced some unexpected challenges when he made a new life for himself in Malaysia. . .

Man on a Mission

As I turned right into the entrance of the Medway, the stiff wind and tide that had flushed me down the…

Bangkok to Nepal by Andy Hepworth

As I wander around Katmandu and all it’s madness before I start a trek..

Just Very Unlucky

Today, having returned from a brilliant week in Spain with my husband, daughter and two beautiful…

It must be man flu!

In January 2013 I felt a little bit stiff, the result of the man-flu I was very obviously dying from…

Climbing

Four years ago, on 1 September 2011, I was admitted into the intensive care unit at a hospital…

Hayley’s long road to recovery

On the 26th April 2010 my life as I knew it changed forever. My whole life revolved…

A plan postponed

In November 2011 I gave birth to a beautiful boy. It was a C-section delivery but as a fit 31 year-old woman I recovered quickly and had a very…

Rachel’s road to Rio

It’s 1:00am in Rio on Sunday morning 18/9/16. I’m absolutely exhausted but buzzing with overwhelming joy. Apologies that this is…

Antigua Sailing Dream

I dreamed of this, as I lay paralysed in a hospital bed. The leather skinned steering wheel, warm to the…

Heidi walks up a mountain

Two years ago (May 2012) I started trekking up a mountain in Nepal; I didn’t reach the top but had to be…

Back on the ice

Ice hockey is a sport perhaps most would associate with North America and Canada but this fast paced, physical sport is also…

Jacob Willis – My GBS story

Two years on from the worst period in my life, these dark days when I was wondering what was the point of living ..

Tony Wyatt- My experiences of GBS

On awaking on 31st
October 2012, getting out of bed I said to my wife, ‘there is something wrong with my fingers.’

A Journey through the eyes of a carer

My name is Jacqui and I have been asked to share my experience of supporting my best friend through the …

Roller Derby

I’ve always been an active person. My entire life was based around dance or sport. Swimming was a huge part of my life also…

Ken’s Journey

We had only recently returned from a winter break in Tenerife and were looking forward to Christmas with the family…

Team Tony

In April 2014, Tony Curry was struck down by a severe form of the condition, Miller Fisher. Whilst on holiday in Wales he became ill, was rushed. . .

Russian river cruise

For many years it had been an ambition of mine to visit Russia, particularly St. Petersburg. In February 2010 when I had Guillain-Barre syndrome, and…

GBS- Life moves on

On 1 June 2015, at the age of 68, I was diagnosed with GBS. This followed a bout of food poisoning (campylobacter) a fortnight before…