Your Stories

In our latest newsletter, we shared an encouraging piece from Jon Shelton. Jon sent over a fantastic document but we didn't have the space to print the full thing - you can find the unabridged copy here. I’m not sure if the numbers have changed much since 2010 when I...

40 Years Living with Guillain-Barré Syndrome (GBS): A Self Case Study Introduction As I approach my 70th year and reflect on the 40 years since my diagnosis with Guillain-Barré Syndrome (GBS), I aim to share my experiences to inform and possibly help others affected...

Last year Jodie Prior undertook 12 challenges for GAIN in 12 months, all in the name of her Grandad, Colin. Here is her story of a most remarkable year. I lost my beloved Grandad, Colin, to Guillain-Barré syndrome in 2020 during the Covid-19 pandemic. My family were...

Cheryl Perkins lives in Adrada de Haza, a small village in the north of Spain, with her partner, Daniel, 19-month-old son, Luca, two dogs and the cat. Cheryl’s roller coaster of 2020 began whilst she was just over three months pregnant with their second child...

Trevor Jacobs is co-owner of Champion Chase contender Editeur Du Gite but will be watching Cheltenham from his hospital bed. When Trevor Jacobs, part-owner of Champion Chase hope Editeur Du Gite, recently won a four-figure sum on a bet his celebration was more muted...

This is my story about recovering from Guillain-Barre syndrome (GBS) after contracting the very rare illness for the second time at the age of 87. I decided to share my story (with some help from my family) to give hope and inspiration to others with GBS that they too...

Paralympic double gold-medalist, childhood GBS survivor and GAIN’s brand-new Charity Champion! When we reached out to Paralympian cyclist Ben Watson in the summer of 2021, we knew he would be an inspiration to our members and supporters. Little did we know that a few...

Linda Barnard tells us of her determination to beat GBS and get back to being a mum A bit about me – in early 2019, I was about to reach my 51st birthday. As a single working mum of three, I had a busy life, two jobs, six cats, large garden, and I also loved to go out...

Guillain Barré Syndrome …. Chronic Inflammatory Demyelinating Polyneuropathy, two conditions/syndromes/diseases that I had never heard of until Monday 25th June 2018. The week before this date, everything was normal. I was doing Spin classes at my local leisure centre...