GAIN – Support and information on GBS, CIDP and associated inflammatory neuropathies
Head Office: 01529 469910 (Mon- Fri, 9am-3pm)
Outside hours: 0800 374803 (UK) 1800 806152 (RoI)
Facebook Page – https://www.facebook.com/gaincharity
Facebook Group – https://www.facebook.com/727400487277814/
Facebook for Parents – https://www.facebook.com/groups/GuillainBarreKids/
(Online support & information through Facebook)
Direct Gov – Info on benefits, DVLA, etc
Citizens Advice – Free independent and confidential advice including fact sheets, sample letters and budget calculator
Tel. (Wales) 08444 77 20 20
Tel. (England) 08444 111 444
Cruse (bereavement) – Support and advice for people who have lost someone close
Citizens Information Board (ROI) – Information on public services and entitlements in Ireland
Department of Social Protection (ROI) – Welfare services in Ireland
Scope/Dial – Local disability information and advice
Tel. 0808 800 3333
Turn2us – Helping people to access welfare benefits, charitable grants and other financial help
Carers Trust – Support and services for carers
Tel. 0844 800 4361
Disabled Living Foundation – Impartial advice and information on daily living aids
Tel. 0300 123 3084
Carers UK – Support and services for carers
Tel. 0808 808 7777
Age UK – Information, advice and support for older people
Helpline: 0800 169 6565
Disability Rights UK – Promoting independent living for disabled people
Office: 020 7250 3222 (helplines listed on website)
Befriending Networks – UK-wide directory of local befriending services
Emotional and Mental Wellbeing – providing lots of information and advice on how to look after your emotional and mental health.
My Involvement Profile – Keep a list of your access and support requirements so you don’t have to keep repeating them when completing online forms. A really useful tool to record interests, skills, and involvement activities. Having a place to jot down interests and skills is a useful thing to have if you’re thinking about getting involved with an organisation as part of their board, public feedback forums, or research groups.
