CIDP and associated chronic inflammatory neuropathies
Welcome to our CIDP Information Hub.
Here we breakdown what is happening to you or a loved in simple but proper terms. Our information is sourced from our Medical Advisory Board, medical texts, and recognised support providers.
If you have any questions after reading this that you feel haven’t been answered. Please get in touch with us, we will strive to point you in the right direction.
What is CIDP?
We discuss the basics of GBS – what it is, the symptoms, and information on Acute onset CIDP (A-CIDP)
How is CIDP Treated?
We cover Immunoglobulin, Plasma Exchange, Corticosteroids, and is there a “cure”?
What Family & Friends Can Do To Help if Someone is in Hospital?
We cover communication, Mental Stimulation, Financial Worries, Comfort, Coming off a Ventilator, and Staying Positive
Living with CIDP
What Happens if you need Hospitalised, Support and Rehab, and General Prognosis
What is the advice surrounding vaccinations and CIDP?
Containing information on vaccinations via our Medical Advisory Board and sourced journals.
Mental Health & Wellbeing, Relationships, and Carer Support
Contains information on how to care for your mental health. We also discuss relationships, before a section on looking after yourself as a carer
What Are The Causes of CIDP?
How will I get diagnosed by my Doctor, Nerve Tests, and Lumbar Punctures
Other Chronic Conditions
PDN, MMN, MADSAM, Chronic Idiopathic Axonal Neuropathy, Sensory Neuronpathy, Poems Syndrome and more
Returning to Work
When someone is ready to return to work after an absence, the employer should have a procedure they follow.
You can check your workplace’s absence policy for this. Your workplace might have a policy for meeting with employees after absences.
What happens next?
We cover support and rehab, prognosis and pregnancy, pain management, hygiene and health, exercise and physio.