How can I Manage my CIDP? 

In this ongoing blog series we are continuing to look at CIDP, what it is, and how it impacts people directly, and those around them. This week we look at managing your CIDP.

Is CIDP Manageable?

Many people are able to live their lives well and keep their CIDP well managed. If the treatment that you have in place works well then CIDP can be controlled, and while ongoing treatment can be disruptive and intrusive, lots of people with CIDP feel that this is an acceptable price to pay for their condition to not stop them living their life, and to stop progression of symptoms.

Some people can find that their CIDP is so well controlled that it is classed as being in remission. While it may not have gone away, living with it doesn’t impact everyday living.

However, for other people with CIDP, treatment may not be as effective, and you may be left with some ongoing impairments, or worsening symptoms. While this is obviously not a good outcome, it is possible to adapt and change how you live to still make the most of your life and live normally, just in different ways. It can be hard to adapt, but GAIN are here to help where we can.

Will I recover from CIDP?

While some people’s CIDP is so well controlled that it appears to be in remission, at present there is no cure for CIDP. As a result, CIDP is likely to be part of your life, but with the right treatment and management, hopefully not something that fully controls your life.

Support for my CIDP?

There is lots of support available through GAIN and elsewhere to help you manage and live with CIDP. In next weeks blog we will look more deeply at living with CIDP, and what this means. If you think we can help then please get in touch. GAIN are here to provide support, raise awareness, and facilitate research in order to benefit the Inflammatory Neuropathies Community, including people impacted by CIDP. To contact GAIN call 01529 469910 or email office@gaincharity.org.uk.