CIDP and other chronic neuropathies can bring on problems in any relationship, and sexual relationships are not excluded. Dealing with a long-term illness or disability can put a great strain on a relationship, particularly when one partner is partially or totally dependent on the other.  As well as coming to terms with a physical disability, the emotional upheaval can interfere with a couple’s sex life and this can be difficult to talk about.  This can mean that the once close, intimate relationship can become distant and stressful for both partners. Help is available so speak to your GP or a relationship counsellor.

Other sources of relationship support

Relate: https://www.relate.org.uk/

Sexual Advice Association: https://sexualadviceassociation.co.uk/

Hospital discharge can bring mixed emotions. Of course you’re glad to have your family member home, but it is quite normal to feel a bit daunted by what lies ahead, especially if you are now the main carer. Here are a few practical suggestions that can help you in your new role. Other sources of support are listed overleaf.

Ask for a needs assessment for the person you’re caring for – You need this before the council can recommend services such as equipment, home adaptations, help from a paid carer, etc

Get a carer’s assessment – This can be requested at the same time as a needs assessment, via social services at your local council

Don’t be afraid to ask for help – Ask family and friends (shopping, respite, etc), and contact carers’ organisations or Citizens Advice for benefits advice and other support

Look after yourself – Eat a healthy diet, maintain a regular sleep pattern and make time for exercise, preferably in the fresh air or at your local gym or pool, away from the care setting

Remember to rest – Put some activities on hold. Take some time to yourself by arranging respite care from a friend or relative or through social services

Recognise limitations – Both those of the person you’re caring for and your own. Let them try to do things for themselves if they are able, but bear in mind their safety and yours.

Look after your mental health – Talk to each other about your experiences and frustrations during illness and recovery. Talk to your GP if either of you is struggling

Be mindful of risks – Be aware of temperature (cooker, iron, hot bath water, hot drinks), risk of falls due to poor balance, and dropping or spilling things due to weakness

Diet & exercise – If appetite and taste are affected, ask about vitamin supplements to help maintain dietary needs. Ask the community physio about exercises to do between visits

Don’t lose sight of your relationship – Whatever your relationship is to the person you’re caring for, make time for it. Do things together that you both enjoy and that feel ‘normal’

Get in touch with GAIN – We provide information and support, organise peer support via phone or video link, virtual group chats, and run an active and supportive Facebook group

Other sources of support