Blogs
Being diagnosed with Guillain-Barré (GBS), Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP) or another Inflammatory Neuropathy can be a scary time, it can also be a particularly confusing time where you hear lots of long medical terms or get confronted by stacks of literature. In the early stages this can be hard to deal with, so at GAIN we’re providing you some simple and accessible blogs that will hopefully help explain a little of what is happening to you or a loved one.
The first block of these will be going up on a weekly basis, so please check back frequently. Is there something you’d like to hear from GAIN that we haven’t yet covered, please get in touch at office@gainchartity.org.uk. It may already be in the pipeline but we would hate to miss something you may find useful.
What is Living with CIDP like?
What is Living with CIDP like? Many people want to know what to expect on their CIDP journey, and while it is difficult to predict and important to note that everyone’s journey is different, in this blog we wanted to highlight what living with CIDP is like. This post...
GAIN Chief Executive’s Response to ‘Pathways to Work: Reforming Benefits and Support to Get Britain Working’
The UK Government has today (Tuesday 18th March) published a Green Paper called ‘Pathways to Work: Reforming Benefits and Support to Get Britain Working Green Paper.’ This is a consultation paper that lays out the Governments plans around a number of key benefits and...
What are the Symptoms of CIDP
Last time we gave you an overall idea of what Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is. Over the next few weeks we will dig a bit deeper, looking at diagnosis, treatment, and living with CIDP. But this week, let’s look at the symptoms of CIDP. CIDP...
Advice on Guillain-Barré Syndrome (GBS)
Advice on Guillain-Barré Syndrome (GBS) So, you have had a Guillain-Barré Syndrome (GBS) diagnosis, and you are trying to understand what this means. Where do you for advice? This blog looks at who you can speak to, and where to turn for some useful input. If you...
GAIN Chief Executive’s Response to the Spring Statement
Last week the government announced a number of welfare and benefit cuts designed to save £5bn. We know that these announcements created a lot of anxiety across the Inflammatory Neuropathies Community, and with the Spring Statement announced in parliament today, we...
What is the Treatment for CIDP?
This is our fourth weekly blog about CIDP, a rare Inflammatory Neuropathy and autoimmune condition impacting around 600 new people in the UK each year. In previous posts we have looked at diagnosis and symptoms. This week we are looking at the treatments available for...
What is CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
What is Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)? Over the last few months we have written a lot about GBS, but that isn’t the only Inflammatory Neuropathy that we care about. So, lets talk about Chronic Inflammatory Demyelinating...
How can I Manage my CIDP?
In this ongoing blog series we are continuing to look at CIDP, what it is, and how it impacts people directly, and those around them. This week we look at managing your CIDP. Is CIDP Manageable? Many people are able to live their lives well and keep their CIDP well...
How is CIDP Diagnosed?
In this ongoing series of blogs about CIDP, we have already looked at what CIDP is, and CIDP symptoms. Over the next few weeks we will be looking at treatment, living with CIDP, and the impact of CIDP. However, this week we are looking at what is involved in...
Changes to IVIg/Ig Procurement – What It Means For You
The way in which Immunoglobulin (or Ig for short) is purchased and given out in England is changing, and we wanted to make sure that you were aware of what is going on. This doesn’t impact you if you live in Scotland, Wales, Northern Ireland, or the Republic of...