Blogs
Being diagnosed with Guillain-Barré (GBS), Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP) or another Inflammatory Neuropathy can be a scary time, it can also be a particularly confusing time where you hear lots of long medical terms or get confronted by stacks of literature. In the early stages this can be hard to deal with, so at GAIN we’re providing you some simple and accessible blogs that will hopefully help explain a little of what is happening to you or a loved one.
The first block of these will be going up on a weekly basis, so please check back frequently. Is there something you’d like to hear from GAIN that we haven’t yet covered, please get in touch at office@gainchartity.org.uk. It may already be in the pipeline but we would hate to miss something you may find useful.
What is CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
What is Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)? Over the last few months we have written a lot about GBS, but that isn’t the only Inflammatory Neuropathy that we care about. So, lets talk about Chronic Inflammatory Demyelinating...
Changes to IVIg/Ig Procurement – What It Means For You
The way in which Immunoglobulin (or Ig for short) is purchased and given out in England is changing, and we wanted to make sure that you were aware of what is going on. This doesn’t impact you if you live in Scotland, Wales, Northern Ireland, or the Republic of...
Advice on Guillain-Barré Syndrome (GBS)
Advice on Guillain-Barré Syndrome (GBS) So, you have had a Guillain-Barré Syndrome (GBS) diagnosis, and you are trying to understand what this means. Where do you for advice? This blog looks at who you can speak to, and where to turn for some useful input. If you...
The Impact of Guillain-Barré Syndrome (GBS)
The Impact of Guillain-Barré Syndrome (GBS) One of the things that we get asked about most is ‘what is the longer term impact of Guillain-Barré Syndrome (GBS).’ This blog looks at what impact actually means, and what a GBS diagnosis may mean for you and your family....
Living with Guillain-Barré Syndrome (GBS)
Living with Guillain-Barré Syndrome (GBS) This blog is all about living with Guillain-Barré Syndrome (GBS), coping with residuals, and adapting to any changes to your life. If you want to know more about what happens earlier in the GBS journey then check out our other...
What does Recovery from Guillain-Barré Syndrome (GBS) look like?
Guillain-Barré Syndrome (GBS) Recovery This blog is all about your ongoing recovery from Guillain-Barré Syndrome (GBS), especially when you return home from hospital. If you want to know more about what happens earlier in the GBS journey then check out our other blogs...
What is Rehabilitation following Guillain-Barré Syndrome (GBS) like?
Guillain-Barré Syndrome (GBS) – Rehabilitation In this blog series we are taking an accessible look look at Guillain-Barré Syndrome (GBS). We've already covered what it is, the symptoms you should look out for, how it is diagnosed, and the treatment you may receive....
How is Guillain-Barré Syndrome (GBS) Treated?
How is Guillain-Barré Syndrome (GBS) Treated? In the previous blogs in this series, we have looked at the symptoms of Guillain-Barré Syndrome (GBS), and how clinicians diagnose GBS. In this blog we are looking at the treatment you can expect if you are diagnosed with...
New Year Blog – Rich Collins, CEO
As we move into the New Year, I thought it would be a good idea to look back on 2024, and have a think about 2025. This time last year I was sitting at home waiting for a start date as the new Chief Executive with GAIN. Looking back, I’m not sure what I was expecting....
How is Guillain-Barré Syndrome (GBS) Diagnosed?
How is Guillain-Barré Syndrome (GBS) Diagnosed? In this post, we are going to look at how Guillain-Barré Syndrome (GBS) is diagnosed. If you want to know what GBS is then check out our blog post: What is Guillain-Barré Syndrome? If you want to read about GBS symptoms...