About Us
GAIN (Guillain-Barré and Associated Inflammatory Neuropathies) is the only UK charity dedicated to supporting people impacted by Guillain-Barré Syndrome and other related inflammatory neuropathies. GAIN is a well-respected national charity reaching and supporting thousands of people impacted by GBS, CIDP, MMN and other life-changing conditions each year.
GBS is an autoimmune neurological condition that affects the nerves that control movement and senses (the peripheral nervous system). It can cause numbness and weakness, and some people may be completely paralysed or may require intensive care treatment. GBS impacts people in very different ways and everyone’s journey is different.
CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) is a rare progressive condition that is characterised by gradually increasing sensory loss and weakness over a longer period of time. Long term treatment and support may be needed.
Around 1,300 people are impacted by GBS, CIDP, and related conditions each year, and for many people the impact on them and their families is significant.
GAIN provides support, information, and advice to people impacted by GBS and other related conditions. The charity also carries out and funds research, as well as raising awareness around these rare yet life changing conditions. GAIN does not receive any government funding, instead we rely on donations and funding from the public to provide services, and to seek access to new treatments and tools to support people’s journeys through GBS, CIDP, and related conditions.
To find out more about GAIN then check out our social media channels (@gaincharity) or visit our website www.gaincharity.org.uk.
To contact us please email office@gaincharity.org.uk or call 01529 469910.
Our Staff
We are only a small staff team made up of:
Rich Collins – Chief Executive – rich@gaincharity.org.uk
Claire Laird – Information and Administration Officer – claire@gaincharity.org.uk
Our Trustees
We have eight Trustees who support GAIN and make up our Board. They are:
- Carol Hooper
- Jatinder Paul
- James Wilson
- Jenny Willison
- Lee Raynor
- Sean Austin
- Steph Parker
Our Office
Our office is based in Sleaford, but we cover all of the UK and Ireland. Our core office hours are Monday – Friday, 9.30am – 4.30pm, but please bear in mind if you ring and don’t answer then we are probably on another call. Just leave a message and we will get back to you as soon as we can.
You can reach us via:
Email – office@gaincharity.org.uk
Phone – 01529 469910
Freephone (UK) – 0800 374 803
Freephone (Republic of Ireland) – 1800 806152
WhatsApp – 07878 090965
We are proud to be part of these great organisations
