We had never ever heard of Guillain-Barre syndrome. We managed to get the vaccine script that was provided with his flu vaccine and Guillain-Barre was listed as a rare side effect.
Once he was woken the effects of his illness became a real living nightmare, like ‘locked in’ syndrome Dad couldn’t speak or move, all he could do was move his eyes.
We tried hopelessly to understand what was happening to him, the doctors didn’t really know either. So many questions, no one could answer, so we googled GBS and found GAIN.
We contacted GAIN, they helped put us in touch with other people who has had GBS and answered lots of questions including contact with a GBS specialist, we attended a conference and were able to ask lots of questions.