Joining a video chat is easy, and is a safe and accessible way to keep in touch and feel connected with other people who understand the issues you are facing. From March, we’re introducing a new, more tailored monthly chat for people who have been affected by GBS or an acute variant (AMAN, AMSAN, Miller Fisher), along with a separate session for those of you who are living with CIDP or a chronic variant (MADSAM, MMN/CB, PDN, POEMS, etc).
We also know that it isn’t only the person with the diagnosis whose life is turned upside down. If you live with someone diagnosed with one of these conditions, perhaps adapting to a new role as carer, or just struggling to come to terms with a very different and uncertain future, then let us know if you would be interested in talking to people in a similar situation by emailing email@example.com
Sign up for the Starleaf App from your smart phone, tablet or computer, or if you prefer you can dial in on your home phone.
2nd Tuesday of each Month at 2pm – a chance to chat with other members– click here to join
3rd Thursday of the month at 2pm is the GBS/acute variants patient forum Click here to join
4th Thursday of the month at 2pm is the CIDP/chronic variants patient forum Click here to join
If you live in the North West you are welcome to join the Lancashire and Cumbria meeting held on 1st Friday of the month at 2pm. Click here to join the meetings
If you have any issues accessing the call, please email or call the office for help.