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All Party Parliamentary Group meeting Monday 9th July

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On Monday 9 July, the All Party Parliamentary Group (APPG) on Rare, Genetic and Undiagnosed Conditions held a meeting on European Reference Networks (ERNs).

ERNs connect clinicians and researchers across Europe to allow expertise to be shared across borders, allowing faster access to expert advice, diagnosis and care.

Here is the link for the full write up:

https://www.geneticalliance.org.uk/news-events/news/all-party-parliamentary-group-meeting-on-european-reference-networks/?mc_cid=82420eb742&mc_eid=8042c2cd80

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