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Guillain-Barré & Associated

Inflammatory Neuropathies

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President Emeritus & Patrons

President Emeritus

Glennys Sanders MBE, founded the GBS Support Group in 1985, building on this strong foundation this charity merged with Guillain-Barre and Associated Inflammatory Neuropathies on 3 February 2014. Glennys set up the original charity after she found herself in the terrifying situation of being completely paralysed by GBS and relying on a ventilator to breathe. She began to wonder how others without such supportive families as her own must feel and was determined that this should not happen again to anyone. Glennys continues to support the work of the charity.
Glennys and Howard Sanders
 
 

Patron

Air Marshal Sir Ian Macfadyen KCVO CB OBE FRAeS RAF (Retired)

Sir Ian  was educated at Marlborough College and entered RAF College Cranwell in 1960, graduating with the Sword of Honour. His productive RAF career began as a Lightning pilot in the United Kingdom and Germany. From 1970, he served as a flying instructor at RAF College Cranwell on Jet Provosts and was a member of ‘The Poachers’ formation aerobatics team. He moved onto Phantoms, serving initially with No 43 Squadron when it reformed in 1974 and then with No 111 Squadron where he became the RAF’s solo aerobatic pilot. As a squadron commander he commanded No 29 Squadron and No 23 Squadron and later became Officer Commanding RAF Leuchars in Fyfe. He served as the In-theatre Commander of British Forces Gulf from 1991. He was promoted to Air Marshal in 1994, and retired from the RAF in February 1999.

Sir Ian was appointed Lieutenant Governor of the Isle of Man in 2000, serving in that post until 2005. As Lieutenant Governor, he took an interest in the development of young people on the Island. He was Chairman of The Prince’s Trust and The Golden Jubilee Trust, which aimed to promote better citizenship within the Isle of Man.

More recently Sir Ian was Constable and Governor of Windsor Castle and the Honorary Inspector General of the Royal Auxiliary Air Force until his retirement in 2014.

Sir Ian is a past Chairman of the Board of Trustees of the RAF Museum and was the National President of the Royal British Legion from 2006 to 2009. He assumed his duties with the Royal Auxiliary Air Force and at Windsor Castle in 2009. Air Marshal Macfadyen was made an Officer of the Order of the British Empire in 1984 and a Companion of the Order of the Bath in recognition of his meritorious service.

Sir Ian  contracted and recovered from the Miller Fisher variant of GBS in 2008.

 

Patron

Professor Richard Hughes MD FRCP FMedSci

Professor Hughes is Emeritus Professor of Neurology at King’s College London, and Visiting Professor of Neurology at University College London.

Richard Hughes studied medicine at Cambridge University and then at Guy’s Hospital Medical School. He was appointed Consultant Neurologist at Guy’s Hospital in 1975 and Professor of Neurology at what is now King’s College London in 1987. He was awarded Fellowship of the Academy of Medical Sciences in 2000 and the Medal of the Association of British Neurologists in 2006. He retired from his NHS consultancies in 2007 but maintains his research interests in the pathogenesis and treatment of GBS, CIDP and especially systematic reviews of treatment for neuromuscular disease.

In 1998, Professor Hughes founded the Cochrane Neuromuscular Review Group. He was the sole Co-ordinating Editor until April 2009 when he shared the position with Dr Michael Lunn and will step down in April 2010. He has led international trials of intravenous immunoglobulin and immunosuppressive drugs in GBS and CIDP. His publications include 12 books (including a landmark textbook on GBS), 47 book chapters, more than 190 original journal articles and more than 120 editorials, reviews and other journal articles.

Professor Hughes is the founding Chair of the Inflammatory Neuropathy Consortium, a special interest group of international Peripheral Nerve Society, which aims to facilitate research into the cause and treatment of inflammatory neuropathies. He was formerly Vice-President and Chair of the Scientific Committee of the European Federation of Neurological Societies and became its President in September 2009.

Richard Hughes helped organised the GBS Support Group’s first conference at Guy’s Hospital in 1985 and was either Vice-chairman or Secretary of the Medical Advisory Board until 2009. He was made an Honorary Member of the Charity in 2004.